USTS Data Sharing General Information 

The 2015 U.S. Transgender Survey (USTS) generated data that captured the experiences of transgender adults (18 years and older) throughout the United States, U.S. Territories, and U.S. military bases overseas. The survey covered a wide range of experiences, and the final sample included 27,715 respondents. 

The National Center for Transgender Equality (NCTE) has a strong interest in expanding the field of knowledge about the lives and experiences of transgender people. Therefore, NCTE is making USTS data available to the broader research and advocacy communities for secondary analyses.

As the owner of USTS data and in accordance with Institutional Review Board (IRB) requirements, NCTE is committed to protecting the confidentiality of USTS respondents and guarding against the disclosure of their identities. Therefore, USTS data has undergone processes to remove personally identifying information, and the de-identified dataset will be made available to those who request it upon approval by NCTE. 

NCTE has an interest in ensuring that research using USTS data makes unique contributions to the field of knowledge about the lives and experiences of transgender people. Therefore, USTS data requests for projects that are duplicative—having either been previously approved or conducted by NCTE or another organization or individual—will not be approved. Prior to submitting a data request, researchers should review the abstracts posted in the Approved Projects section below to determine which projects have previously been approved for use of USTS data. 

Once a data request has been submitted, researchers can expect to receive information about the approval or denial of their request within 4-6 weeks. If approved, researchers will be sent additional information about completing the request and receiving the data. Researchers will also be required to enter into a data-sharing agreement with NCTE. The data-sharing agreement will restrict the use of the data to the project for which the data request was approved and also outline the conditions of receiving the USTS data.

Types of Datasets 

USTS data has been de-identified to protect the confidentiality of respondents. Three versions of the USTS dataset are available for request, which are described below. One version of the dataset will not require documentation of Institutional Review Board (IRB) review for approval of use of the dataset by NCTE. However, to receive datasets that include zip codes and/or write-in responses, NCTE will require some level of IRB review and submission of documentation. A request form must be submitted for each research project for which the data is being requested using the data-request form link below. 

USTS public-use dataset 1: Dataset does not include write-in responses or zip codes 

Eligibility: No documentation of IRB review required.

USTS public-use dataset 2: Dataset includes redacted write-in responses, but does not include essay responses (Question 32) or zip codes (dataset not yet available for request)

Eligibility: Project has undergone expedited or full board IRB review and was approved. IRB approval letter and IRB-approved data security protocols must be submitted to NCTE as part of the request for the dataset.

USTS public-use dataset 3: Dataset includes redacted write-in responses, redacted essay responses (Question 32), and zip codes (dataset not yet available for request)

Eligibility: Project has undergone a full board IRB review and was approved. IRB approval letter and IRB-approved data security protocols must be submitted to NCTE as part of the request for the dataset. 

 

Note: The 2008-09 National Transgender Discrimination Survey (NTDS) dataset is also available for request through a separate request form. Two versions of the NTDS dataset are available: one that does not require documentation of IRB approval and one that does require documentation of IRB approval (see NTDS data-request form link below). 

Data-Request Instructions

  • Review the information in the USTS Data Sharing General Information section, including criteria for data-request approval and information about available datasets. Also review abstracts for projects that have previously been approved [insert URL here]
  • Complete the data-request form via the link below. To ensure an opportunity for a thorough evaluation of the project for which the USTS data is being requested, submissions should include as much of the following information as possible:
    • First and last name
    • Contact information (email, phone)
    • Zip code
    • Organization or institution with which requestor is affiliated (e.g., name of non-profit organization or academic institution)
    • Department with which requestor is affiliated
    • Title or occupation (e.g., Research Director, Associate Professor, Ph.D. Student)
    • Description of organization or institution (e.g., non-profit, academic, government)
    • Type of project (e.g., book or chapter, self-published organizational report, journal article, dissertation, thesis)
    • Project title
    • Abstract with a detailed description of the project for which data is being requested (300 words max)
    • Timeline for commencing and completing the research project
    • Publication plans
    • Which dataset is being requested and associated IRB documentation, if applicable
    • Access to statistical software for analysis of USTS data
    • Research team members
    • Proposed collaborations with other organizations or institutions

Criteria for data-request approval for non-profit trans- and LGBTQ-organizations and other non-profit organizations

  • Requestor must be affiliated with an organization or institution.
  • Must have a defined project that can be described in detail. 
    • Due to high demand for the dataset at this time, NCTE will not approve use of 2015 USTS data for general exploration without a substantive project that is intended for publication (e.g., students or professors requesting the data for coursework). Research projects for which USTS data is being requested should focus on specific issues and questions and not general topics. For example, a researcher will not be approved for a project that simply seeks to study a large, undefined topic area, such as “health in transgender communities.” The requestor should instead articulate which aspect(s) of health they are seeking to examine.
    • The 2008-09 NTDS is available for general exploration, such as for coursework. Complete the NTDS data-request form for such requests.
  • Must be the principal investigator/lead researcher (or a co-principal investigator/co-lead researcher) on the project for which the data is being requested. 
  • Must indicate any intent to work with other organizations/institutions on the project (e.g., trans, LGBTQ, and non-LGBTQ non-profit organizations, for-profit organizations, or other institutions). Must also list the other organizations/institutions.
  • Must articulate an intention to work on the project within 3 months of requesting the data and complete the project/pursue publication within a defined period of time (up to 2 years from the time the data is received). 
  • Must have plans to release a report on the research findings or publish results in a journal, book, or other medium.
  • Must agree to submit published reports/articles to NCTE for posting on the USTS website or provide a link to or citation for the publication if access to the publication is limited (e.g., the article is only available behind a paywall).
  • The USTS dataset will only be made available in Stata, SPSS, and SAS formats. Access to statistical software for analysis, such as Stata, SPSS, or SAS, is preferred. Exceptions may be made based on an evaluation of the organization’s resources and working relationship with NCTE. NCTE may consider fulfilling requests for analysis from such organizations, depending on the scope and scale of the data request. The NTDS data is only available in Stata and SPSS formats.
  • Must agree to the Terms of Use outlined in the data-sharing agreement.

 

 

Criteria for data-request approval for individuals associated with academic and other research-related institutions

  • Requestor must be affiliated with an organization or institution, or must be able to fully articulate the work that will be done with the USTS as an individual, such as plans to publish an article.
  • Must have a defined project that can be described in detail. 
    • Due to high demand for the dataset at this time, NCTE will not approve use of 2015 USTS data for general exploration without a substantive project that is intended for publication (e.g., students or professors requesting the data for coursework). Research projects for which USTS data is being requested should focus on specific issues and questions and not general topics. For example, a researcher will not be approved for a project that simply seeks to study a large, undefined topic area, such as “health in transgender communities.” The requestor should instead articulate which aspect(s) of health they are seeking to examine.
    • The 2008-09 NTDS is available for general exploration, such as for coursework. Complete the NTDS data-request form for such requests.
  • Must be the principal investigator/lead researcher (or a co-principal investigator/co-lead researcher) on the project for which the data is being requested. For example, a professor cannot submit a data request on behalf of a graduate student who will be using the data for their individual project. In that case, the student would have to submit the request.
  • Must indicate any intent to work with other organizations/institutions on the project (e.g., trans, LGBTQ, and non-LGBTQ non-profit organizations, for-profit organizations, or other academic institutions). Must also list the other organizations/institutions.
  • Must articulate an intention to work on the project within 3 months of requesting the data and complete the project/pursue publication within a defined period of time (up to 2 years from the time the data is received). 
  • Must have plans to publish an article or report, such as in a journal or as a self-published report by an organization, or in the case of students, complete a thesis or other major publishable project.
  • Must agree to submit published reports/articles to NCTE for posting on the USTS website or provide a link to or citation for the publication if access to the publication is limited (e.g., the article is only available behind a paywall).
  • The USTS dataset will only be made available in Stata, SPSS, and SAS formats. Researchers are required to have the necessary skills or qualified personnel to complete their projects. NCTE will not provide any data analyses or instruction on how to conduct data analyses. The NTDS dataset is only available in Stata and SPSS formats.
  • Must agree to the Terms of Use outlined in the data-sharing agreement.

    Link to USTS data-request form

    Link to NTDS data-request form